Helpline, Information, and Advocacy Officer

Helpline, Information, and Advocacy Officer

Our Information and Advocacy Service coordinates our support for families, providing advice and practical support to enable individuals to access the services, benefits and equipment they are entitled to. As part of our support we also connect individuals with others affected by these rare conditions through our peer support networks. In this role you would ensure that service users receive a high quality of support and assist them to access the statutory funding they are entitled to.

Please download the job description to see full role responsibilities.


This role is based at our office in Southwark, London (with flexibility for home working). It is within a short walking distance of Southwark and Borough Tube stations. It is also a short distance from Waterloo Station, London Bridge Station and Blackfriars Station. We are also a 5 minute walk from the Tate Modern and Southbank, perfect place to go for lunch during the warm summer months.

To apply, please send your CV and covering letter detailing why you are best suited to the role to by 18 July 2021.

Please note interviews likely to be held on 26 or 27 July via Microsoft Teams.